We first met Jerry when his mum attended our mother and baby tent at our community fun day in 2014. His story is very emotive and highlights the plight of many Kenyan parents to day.
Jerry’s mum Eunice is happy for us to tell his story in the hope it will help other children.
Introducing Jeremiah ( Jerry at 6 years old).
Jeremiah was six when we met him , far too old for the work we were doing that day. Our age limit for the mother and baby tent was six months old . His mother Eunice came to us out of desperation and knew he was too old but had nowhere else to go.
Jerry has multiple health problems as you can see but many that you cannot. He has hydrocephalus, is blind and cannot swallow solid food. No one knows for sure if he can hear but we suspect he can a little. He has severe spasticity of his limbs and is painfully thin. He has a nasty scar on his face from when he had his brain shunt put in , Eunice said his feeding tube got infected ?
His young life has consisted of living mostly in the dark, laid flat on his back on the floor . No stimulation ,never upright unless held in your arms. No toys or sensory stimulation.
Eunice is a good mother, many disabled children in Kenya can be hidden away, as some think it is a curse for their children to be disabled. Eunice is not so, she takes him with her carrying him in a kanga – sling on her back, where ever she goes, unless she is going to work, then her mother looks after him. Eunice is a single mum with two other children. She has a strong conviction to care for and support her family but often without an income this is difficult especially considering Jerry’s needs.